TY - JOUR
T1 - Culture, identity, strength and spirituality
T2 - A qualitative study to understand experiences of African American women breast cancer survivors and recommendations for intervention development
AU - Yan, Alice F.
AU - Stevens, Patricia
AU - Holt, Cheryl
AU - Walker, Alonzo
AU - Ng, Alexander
AU - McManus, Patricia
AU - Basen-Enguist, Karen
AU - Weinhardt, Lance S.
AU - Underwood, Sandra M.
AU - Asan, Onur
AU - Wang, Min Qi
N1 - Publisher Copyright:
© 2019 John Wiley & Sons Ltd
PY - 2019/5
Y1 - 2019/5
N2 - Objective: Despite advancements in cancer treatment, racial disparities in breast cancer survival persist, with African American women experiencing lower survival rates and poorer quality of life than non-Hispanic White women. Using a social cognitive model of restorative well-being as a framework, this qualitative study sought: (a) to examine strength- and culture-related factors associated with African American female breast cancer survivors’ cancer coping and post-treatment experiences and (b) to make recommendations for culturally sensitive intervention. Methods: Eight focus groups occurred with a total of 40 local African American breast cancer survivors. Focus groups were audiotaped and transcribed verbatim. Framework analyses were used to identify themes. NVivo qualitative analysis software-managed data. Results: Two major themes emerged from the focus group discussions: (a) God enables breast cancer survivorship and works every day in our lives and (b) the healthiest thing about us is that we are strong African American women. Recommendations for intervention planning and implementation were made towards intervention structure, content development and language framing in a local context. Conclusion: Findings suggest a need for community-based participatory survivorship interventions that are culturally and spiritually consonant and peer-based. Such interventions may respond to the cancer-related and personal needs of the target population.
AB - Objective: Despite advancements in cancer treatment, racial disparities in breast cancer survival persist, with African American women experiencing lower survival rates and poorer quality of life than non-Hispanic White women. Using a social cognitive model of restorative well-being as a framework, this qualitative study sought: (a) to examine strength- and culture-related factors associated with African American female breast cancer survivors’ cancer coping and post-treatment experiences and (b) to make recommendations for culturally sensitive intervention. Methods: Eight focus groups occurred with a total of 40 local African American breast cancer survivors. Focus groups were audiotaped and transcribed verbatim. Framework analyses were used to identify themes. NVivo qualitative analysis software-managed data. Results: Two major themes emerged from the focus group discussions: (a) God enables breast cancer survivorship and works every day in our lives and (b) the healthiest thing about us is that we are strong African American women. Recommendations for intervention planning and implementation were made towards intervention structure, content development and language framing in a local context. Conclusion: Findings suggest a need for community-based participatory survivorship interventions that are culturally and spiritually consonant and peer-based. Such interventions may respond to the cancer-related and personal needs of the target population.
KW - African American women
KW - breast cancer survivors
KW - qualitative study
KW - quality of life
KW - spirituality
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U2 - 10.1111/ecc.13013
DO - 10.1111/ecc.13013
M3 - Article
C2 - 30761637
AN - SCOPUS:85061576092
SN - 0961-5423
VL - 28
JO - European Journal of Cancer Care
JF - European Journal of Cancer Care
IS - 3
M1 - e13013
ER -