Culture, identity, strength and spirituality: A qualitative study to understand experiences of African American women breast cancer survivors and recommendations for intervention development

Alice F. Yan, Patricia Stevens, Cheryl Holt, Alonzo Walker, Alexander Ng, Patricia McManus, Karen Basen-Enguist, Lance S. Weinhardt, Sandra M. Underwood, Onur Asan, Min Qi Wang

    Research output: Contribution to journalArticlepeer-review

    20 Scopus citations

    Abstract

    Objective: Despite advancements in cancer treatment, racial disparities in breast cancer survival persist, with African American women experiencing lower survival rates and poorer quality of life than non-Hispanic White women. Using a social cognitive model of restorative well-being as a framework, this qualitative study sought: (a) to examine strength- and culture-related factors associated with African American female breast cancer survivors’ cancer coping and post-treatment experiences and (b) to make recommendations for culturally sensitive intervention. Methods: Eight focus groups occurred with a total of 40 local African American breast cancer survivors. Focus groups were audiotaped and transcribed verbatim. Framework analyses were used to identify themes. NVivo qualitative analysis software-managed data. Results: Two major themes emerged from the focus group discussions: (a) God enables breast cancer survivorship and works every day in our lives and (b) the healthiest thing about us is that we are strong African American women. Recommendations for intervention planning and implementation were made towards intervention structure, content development and language framing in a local context. Conclusion: Findings suggest a need for community-based participatory survivorship interventions that are culturally and spiritually consonant and peer-based. Such interventions may respond to the cancer-related and personal needs of the target population.

    Original languageEnglish
    Article numbere13013
    JournalEuropean Journal of Cancer Care
    Volume28
    Issue number3
    DOIs
    StatePublished - May 2019

    Keywords

    • African American women
    • breast cancer survivors
    • qualitative study
    • quality of life
    • spirituality

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