TY - JOUR
T1 - Parental Perceptions of Displayed Patient Data in a PICU
T2 - An Example of Unintentional Empowerment
AU - Asan, Onur
AU - Scanlon, Matthew C.
AU - Crotty, Bradley
AU - Holden, Richard J.
AU - Flynn, Kathryn E.
N1 - Publisher Copyright:
© 2019 by the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.
PY - 2019/5/1
Y1 - 2019/5/1
N2 - Objectives: To explore the perceptions of parents of pediatric patients in a PICU regarding real-time open electronic health record data displayed in patient rooms. Design: Cross-sectional qualitative interview study. Setting: PICU in a large Midwestern tertiary-care children's hospital. Subjects: Parents of patients in a PICU (n = 33). Measurements and Main Results: Qualitative data were collected through in-person semi-structured, individual, and small-group interviews. Data were collected from March 2016 to July 2016, with approval from the study hospital's institutional review board. Data were analyzed using inductive thematic analysis. Results included positive effects of accessing real-time open electronic health record data on family empowerment, situation awareness, potential error detection, understanding of medical data, and facilitating discussions during rounds. Concerns were reported regarding privacy of information as well as potential misinterpretation of displayed data. We identified several ways to improve this collaborative technology to make it more family-centered. Conclusions: This study suggests that a new health information technology system providing continuous access to open electronic health record data may be an effective way to empower and engage parents in the PICU, but potential drawbacks were also noted. The results also provide insights into the collaborative use of health information technology in the PICU setting.
AB - Objectives: To explore the perceptions of parents of pediatric patients in a PICU regarding real-time open electronic health record data displayed in patient rooms. Design: Cross-sectional qualitative interview study. Setting: PICU in a large Midwestern tertiary-care children's hospital. Subjects: Parents of patients in a PICU (n = 33). Measurements and Main Results: Qualitative data were collected through in-person semi-structured, individual, and small-group interviews. Data were collected from March 2016 to July 2016, with approval from the study hospital's institutional review board. Data were analyzed using inductive thematic analysis. Results included positive effects of accessing real-time open electronic health record data on family empowerment, situation awareness, potential error detection, understanding of medical data, and facilitating discussions during rounds. Concerns were reported regarding privacy of information as well as potential misinterpretation of displayed data. We identified several ways to improve this collaborative technology to make it more family-centered. Conclusions: This study suggests that a new health information technology system providing continuous access to open electronic health record data may be an effective way to empower and engage parents in the PICU, but potential drawbacks were also noted. The results also provide insights into the collaborative use of health information technology in the PICU setting.
KW - collaborative health information technology
KW - electronic health record open data
KW - family engagement
KW - human-computer interaction
KW - pediatric intensive care
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U2 - 10.1097/PCC.0000000000001895
DO - 10.1097/PCC.0000000000001895
M3 - Article
C2 - 31058783
AN - SCOPUS:85065635719
SN - 1529-7535
VL - 20
SP - 435
EP - 441
JO - Pediatric Critical Care Medicine
JF - Pediatric Critical Care Medicine
IS - 5
ER -