Tackling dilemmas in supporting "the whole person" in online patient communities

Jina Huh; Rupa Patel; Wanda Pratt

doi:10.1145/2207676.2208535

Tackling dilemmas in supporting "the whole person" in online patient communities

Jina Huh
, Rupa Patel
, Wanda Pratt

Department of Computer Science

University of Washington

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

37 Scopus citations

Abstract

Online health communities that engage the patient as a whole person attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals'involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients'quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients'interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities.

Original language	English
Title of host publication	Conference Proceedings - The 30th ACM Conference on Human Factors in Computing Systems, CHI 2012
Pages	923-926
Number of pages	4
DOIs	https://doi.org/10.1145/2207676.2208535
State	Published - 2012
Event	30th ACM Conference on Human Factors in Computing Systems, CHI 2012 - Austin, TX, United States Duration: 5 May 2012 → 10 May 2012

Publication series

Name	Conference on Human Factors in Computing Systems - Proceedings

Conference

Conference	30th ACM Conference on Human Factors in Computing Systems, CHI 2012
Country/Territory	United States
City	Austin, TX
Period	5/05/12 → 10/05/12

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Collaborative help
Health
Online patient communities
The whole person

Access to Document

10.1145/2207676.2208535

Cite this

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title = "Tackling dilemmas in supporting {"}the whole person{"} in online patient communities",

abstract = "Online health communities that engage the patient as a whole person attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals'involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients'quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients'interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities.",

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Huh, J, Patel, R & Pratt, W 2012, Tackling dilemmas in supporting "the whole person" in online patient communities. in Conference Proceedings - The 30th ACM Conference on Human Factors in Computing Systems, CHI 2012. Conference on Human Factors in Computing Systems - Proceedings, pp. 923-926, 30th ACM Conference on Human Factors in Computing Systems, CHI 2012, Austin, TX, United States, 5/05/12. https://doi.org/10.1145/2207676.2208535

Tackling dilemmas in supporting "the whole person" in online patient communities. / Huh, Jina; Patel, Rupa; Pratt, Wanda.
Conference Proceedings - The 30th ACM Conference on Human Factors in Computing Systems, CHI 2012. 2012. p. 923-926 (Conference on Human Factors in Computing Systems - Proceedings).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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AU - Patel, Rupa

AU - Pratt, Wanda

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AB - Online health communities that engage the patient as a whole person attend to personal and medical needs in a holistic manner. Whether current communities structure interaction between health professionals and patients to address the whole person is an open question. To gain insights into this question, we examined a sample of online patient communities to understand health professionals'involvement in bringing in medical advice into peer-patient conversations. We found the communities fall short in supporting the whole person, because (1) patient expertise and clinical expertise generated by health professionals are shared separately, and (2) patients'quantified data are separate from narrative experiences. Such separation in the design of these systems can lead to limitations in addressing patients'interwoven medical and personal concerns. We discuss dilemmas and design implications for supporting the whole person in online patient communities.

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BT - Conference Proceedings - The 30th ACM Conference on Human Factors in Computing Systems, CHI 2012

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ER -

Tackling dilemmas in supporting "the whole person" in online patient communities

Abstract

Publication series

Conference

UN SDGs

Keywords

Access to Document

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