TY - GEN
T1 - The Future of Research on Online Health Communities
T2 - 24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021
AU - Papoutsaki, Alexandra
AU - Huh-Yoo, Jina
AU - Macleod, Haley
AU - Mamykina, Lena
AU - Miller, Andrew D.
AU - Yarosh, Svetlana
AU - Epstein, Daniel A.
N1 - Publisher Copyright:
© 2021 ACM.
PY - 2021/10/23
Y1 - 2021/10/23
N2 - Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.
AB - Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.
KW - Caregivers
KW - Healthcare providers
KW - Online health communities
KW - Self-management
KW - Sensemaking
UR - http://www.scopus.com/inward/record.url?scp=85118529538&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85118529538&partnerID=8YFLogxK
U2 - 10.1145/3462204.3481721
DO - 10.1145/3462204.3481721
M3 - Conference contribution
AN - SCOPUS:85118529538
T3 - Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW
SP - 352
EP - 355
BT - CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing
Y2 - 23 October 2021 through 27 October 2021
ER -
