The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support

Alexandra Papoutsaki; Jina Huh-Yoo; Haley Macleod; Lena Mamykina; Andrew D. Miller; Svetlana Yarosh; Daniel A. Epstein

doi:10.1145/3462204.3481721

The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support

Alexandra Papoutsaki
, Jina Huh-Yoo
, Haley Macleod
, Lena Mamykina
, Andrew D. Miller
, Svetlana Yarosh
, Daniel A. Epstein

Pomona College
Meta
Columbia University
Indiana University-Purdue University Indianapolis
University of Minnesota Twin Cities
University of California at Irvine

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

6 Scopus citations

Abstract

Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.

Original language	English
Title of host publication	CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing
Pages	352-355
Number of pages	4
ISBN (Electronic)	9781450384797
DOIs	https://doi.org/10.1145/3462204.3481721
State	Published - 23 Oct 2021
Event	24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021 Companion - Virtual, Online, United States Duration: 23 Oct 2021 → 27 Oct 2021

Publication series

Name	Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW

Conference

Conference	24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021 Companion
Country/Territory	United States
City	Virtual, Online
Period	23/10/21 → 27/10/21

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Caregivers
Healthcare providers
Online health communities
Self-management
Sensemaking

Access to Document

10.1145/3462204.3481721

Cite this

Papoutsaki, A., Huh-Yoo, J., Macleod, H., Mamykina, L., Miller, A. D., Yarosh, S., & Epstein, D. A. (2021). The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support. In CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing (pp. 352-355). (Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW). https://doi.org/10.1145/3462204.3481721

Papoutsaki, Alexandra ; Huh-Yoo, Jina ; Macleod, Haley et al. / The Future of Research on Online Health Communities : Discussing Membership, Structure, and Support. CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing. 2021. pp. 352-355 (Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW).

@inproceedings{acad6c09a2ce41758a85fc1d78e51b78,

title = "The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support",

abstract = "Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.",

keywords = "Caregivers, Healthcare providers, Online health communities, Self-management, Sensemaking",

author = "Alexandra Papoutsaki and Jina Huh-Yoo and Haley Macleod and Lena Mamykina and Miller, \{Andrew D.\} and Svetlana Yarosh and Epstein, \{Daniel A.\}",

note = "Publisher Copyright: {\textcopyright} 2021 ACM.; 24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021 Companion ; Conference date: 23-10-2021 Through 27-10-2021",

year = "2021",

month = oct,

day = "23",

doi = "10.1145/3462204.3481721",

language = "English",

series = "Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW",

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Papoutsaki, A, Huh-Yoo, J, Macleod, H, Mamykina, L, Miller, AD, Yarosh, S & Epstein, DA 2021, The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support. in CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing. Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW, pp. 352-355, 24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021 Companion, Virtual, Online, United States, 23/10/21. https://doi.org/10.1145/3462204.3481721

The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support. / Papoutsaki, Alexandra; Huh-Yoo, Jina; Macleod, Haley et al.
CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing. 2021. p. 352-355 (Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

TY - GEN

T1 - The Future of Research on Online Health Communities

T2 - 24th ACM Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2021 Companion

AU - Papoutsaki, Alexandra

AU - Huh-Yoo, Jina

AU - Macleod, Haley

AU - Mamykina, Lena

AU - Miller, Andrew D.

AU - Yarosh, Svetlana

AU - Epstein, Daniel A.

PY - 2021/10/23

Y1 - 2021/10/23

N2 - Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.

AB - Online health communities (OHCs) are spaces where people gather for informational and emotional support around specific medical conditions and concerns. Although OHCs are an active and exciting research area that continuously attracts a wide range of approaches and methodologies, the focus has been mostly on a limited selection of OHCs or medical conditions. At the same time, there are novel challenges that OHCs face, including changes to the medical system resulting from the COVID-19 crisis, increased medical misinformation propagating online, and additional focus on personalized medical advice that is less attainable in traditional medical systems. This workshop will bring together researchers to discuss and produce generalizable lessons about membership, structure, and support in OHCs in the context of these novel changes, generating research agendas for future exploration and design of OHCs.

KW - Caregivers

KW - Healthcare providers

KW - Online health communities

KW - Self-management

KW - Sensemaking

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AN - SCOPUS:85118529538

T3 - Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW

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BT - CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing

Y2 - 23 October 2021 through 27 October 2021

ER -

Papoutsaki A, Huh-Yoo J, Macleod H, Mamykina L, Miller AD, Yarosh S et al. The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support. In CSCW 2021 - Conference Companion Publication of the 2021 Computer Supported Cooperative Work and Social Computing. 2021. p. 352-355. (Proceedings of the ACM Conference on Computer Supported Cooperative Work, CSCW). doi: 10.1145/3462204.3481721

The Future of Research on Online Health Communities: Discussing Membership, Structure, and Support

Abstract

Publication series

Conference

UN SDGs

Keywords

Access to Document

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