TY - GEN
T1 - Understanding patient information needs about their clinical laboratory results
T2 - 17th World Congress on Medical and Health Informatics, MEDINFO 2019
AU - Zhang, Zhan
AU - Lu, Yu
AU - Kou, Yubo
AU - Wu, Danny T.Y.
AU - Huh-Yoo, Jina
AU - He, Zhe
N1 - Publisher Copyright:
© 2019 International Medical Informatics Association (IMIA) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).
PY - 2019/8/21
Y1 - 2019/8/21
N2 - Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.
AB - Clinical data, such as laboratory test results, is increasingly being made available to patients through patient portals. However, patients often have difficulties understanding and acting upon the clinical data presented in portals. As such, many turn to online resources to fill their knowledge gaps and obtain actionable advice. In this work, we present a content analysis of the questions posted in a major social Q&A site to characterize lay people's general information needs concerning laboratory test results and to inform the design of patient portals for supporting patients' understanding of clinical data. We identified 15 information needs related to laboratory test results, and clustered them under four themes: understanding the results of lab test, interpreting doctor's diagnosis, learning about lab tests, and consulting the next steps. We draw on our findings to discuss design opportunities for supporting the understanding of laboratory results.
KW - Consumer Health Information
KW - Information Seeking Behaviors
KW - Patient Portals
UR - http://www.scopus.com/inward/record.url?scp=85071454875&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85071454875&partnerID=8YFLogxK
U2 - 10.3233/SHTI190458
DO - 10.3233/SHTI190458
M3 - Conference contribution
C2 - 31438157
AN - SCOPUS:85071454875
T3 - Studies in Health Technology and Informatics
SP - 1403
EP - 1407
BT - MEDINFO 2019
A2 - Seroussi, Brigitte
A2 - Ohno-Machado, Lucila
A2 - Ohno-Machado, Lucila
A2 - Seroussi, Brigitte
PB - IOS Press
Y2 - 25 August 2019 through 30 August 2019
ER -